Uncertainty in Illness
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Uncertainty in Illness. Tara Herr. A grey room full of question marks with an opening going out.
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Objectives. Define the concept of uncertainty in illness Describe attributes of above concept Explain consequences due to concept.
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definition. "The inability to determine the meaning of illness related events" Can be positive or negative.
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attributes/description. PROBABILITY Likelihood of something happening Unpredictable TEMPORALITY Duration, pace, frequency Inability to plan ahead PERCEPTION One's understanding Initial step in uncertainty.
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antecedents/factors. Stimuli frame Symptom pattern, event familiarity, event congruency Cognitive capacities Interpretation Structure providers Sources of information Reduces uncertainty.
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Consequences/outcomes. Emotional distress, anxiety, depression Interventions can promote positive outcomes Personal factors.
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Patient/partner dyad in uncertainty. Effects both patient and partner More responsibilities How can they cope?.
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Application to professional nursing #1. Barriers to care in pediatric cancer: The role of illness uncertainty in relation to parent psychological distress..
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Application to professional nursing #2. “The future is probably now”: Understanding of illness, uncertainty and end‐of‐life discussions in older adults with heart failure and family caregivers..
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Application to professional nursing #3. Further explorations of illness uncertainty: Carers’ experiences of Parkinson’s disease..
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Application to my practice. Emergency department = uncertainty Education leads to reduced uncertainty.
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Future implications. Further research = more effective interventions.
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summary. Three main attributes Antecedents have ability to affect patient outcome and perception Consequences associated with negative outcomes Intervention improves quality of life.
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references. McCormick, K. M. (2002). A concept analysis of uncertainty in illness. Journal of Nursing Scholarship, 34 (2), 127-131. https://doi.org/10.1891/0889-7182.9.1.3 Zhang, Y. (2017). Uncertainty in illness: Theory review, application, and extension. Oncology Nursing Forum, 44 (6), 645–649. https://doi.org/10.1188/17.ONF.645-649 Perez, M. N., Traino, K. A., Bakula, D. M., Sharkey, C. M., Espeleta, H. C., Delozier, A. M., Mayes, S., McNall, R., Chaney, J. M., & Mullins, L. L. (2020). Barriers to care in pediatric cancer: The role of illness uncertainty in relation to parent psychological distress. Psycho-Oncology , 29 (2), 304–310. https://doi.org/10.1002/pon.5248 Im , J., Mak, S., Upshur, R., Steinberg, L., & Kuluski , K. (2019). “The future is probably now”: Understanding of illness, uncertainty and end‐of‐life discussions in older adults with heart failure and family caregivers. Health Expectations , 22 (6), 1331–1340. https://doi.org/10.1111/hex.12980 Hurt, C. S., Cleanthous , S., & Newman, S. P. (2017). Further explorations of illness uncertainty: Carers’ experiences of Parkinson’s disease. Psychology & Health , 32 (5), 549–566. https://doi.org/10.1080/08870446.2017.1283041.